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Please help my daughter with pseudotumor AMA

Tina Horvath
Nov 18, 2017

https://www.youcaring.com/ashleyhorvath-879540.  That is the link above if you can donate to her fundraiser. I am doing this fundraiser to get help for my family. My daughter woke up in feb 2014 with a very bad headache. She went back to bed and woke with her face drooping and eye twitching. I took her to the er and that is where this long year battle of trying to figure out what was wrong with her. We finally found out that she pseudotumor cerebri which is IIH along with the movement disorder that makes her tremor in her arms, feet and hands. A pseudotumor is a fake brain tumor. She has all the symptoms that someone with a brain tumor has. She gets whooshing sound in her ears. Eye problems, pressure and pain in head along with the tremoring of her body. She has had 4 lp surgeries with her last one to remove the lp shund cause it was broke. She has had two brain surgeries for the vp shunt that is suppose to drain fluid off of her brain and drain into her stomach. She will be having another surgery to replace the vp shunt. Currently she is in shunt failure and has a MRI friday to see whatelse is going on in her brain that the dr could be missing. She cannot work and currently is waiting on social security. I was working and got fired due to my daughter having emergency surgery because she was leaking spinal fluid and it needed to be fixed. Last week she had her 40th lumbar punctue (spinal tap ) to lower her pressure in her brain. It helped for a couple hours and then all of her symptoms came back. . We cant seem to get ahead. We could really use help with food, gas , bills and some other things. . If you cant help please just pray for Ashley. PLEASE IS ANYONE CAN HELP US CLICK ON LINK ABOVE or BELOW IF YOU CAN DONATE. THANK YOU  https://www.youcaring.com/ashleyhorvath-879540 .


Tina Horvath says:

This AMA will end Dec 29, 2017 12PM EST

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Conversation (47)

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What's with crowdfunding that made you choose it as a platform to promote your cause?

Dec 19, 4:29AM EST0

Thought I would try it out

Dec 19, 5:49AM EST0

Have you tried traditional fundraisers?

Dec 15, 4:56AM EST0

I don't have a fundraiser right now

Dec 15, 1:51PM EST0

How quickly do you need your money?

Dec 14, 8:40PM EST0

Trying to get help as soon as possible we are homeless now

Dec 15, 1:50PM EST0

Who else is working for the family?

Dec 14, 6:03PM EST0

We have a few agencies helping some

Dec 15, 1:51PM EST0

Do you have a backup plan if crowdfunding fails?

Dec 10, 9:41PM EST0

Not sure

Dec 15, 1:51PM EST0

What was the causative factor resulting in this condition?

Dec 9, 10:42AM EST0

They don't know what causes pseudotumor

Dec 15, 1:53PM EST0

Have you posted this to other social media sites?

Dec 8, 10:59PM EST0

Facebook yes

Dec 15, 1:52PM EST0

Have you tried traditional fundraisers?

Dec 8, 6:23PM EST0

Have you tried approaching charitable organizations or government agencies?

Dec 8, 2:20PM EST0

Do you know other effective platforms to launch crowdfunding?

Dec 7, 11:48AM EST0

How is your doing these days? I hope this fundraising will help you get what your daughter needs.

Dec 3, 1:27AM EST0

Were not doing very good were homeless

Dec 15, 1:53PM EST0

Do you believe in Jesus Christ as the savior and Provider of all our needs.

Nov 30, 7:21AM EST0

Can someone please help we have to pay 100 dollars toward electric and water today because we have a disconnect

Nov 22, 8:07AM EST0

When and how did you think of this crowdfunding idea?

Nov 20, 3:53AM EST0

I had a friend tell me to try to post in crowd funding to see if we could get some help.

Nov 20, 9:00AM EST0

Hoping someone can help us 

Nov 19, 11:13AM EST0

Do you need advice or connections?

Nov 18, 11:36PM EST0

I need to find some help. Any suggestions would be appreciated

Nov 18, 11:51PM EST0

How difficult is it to raise funds through crowdfunding sites compared to traditional fundraisers?

Nov 18, 3:57PM EST0

Never tried traditional but it is hard to get help on crowd funding sites

Nov 18, 5:12PM EST0

Has she the chance to bond with her baby while in the hospital?

Nov 18, 3:37PM EST0

Myself and her daughter stay in the hospital with her. It is to hard for Ashley to recover. She worries and gets upset and starts tremoring so we stay to help with that

Nov 18, 5:12PM EST0

What is her chance to get out of this safely?

Nov 18, 1:52PM EST0

With the surgery there is risks but she is brave and strong. We just pray alot

Nov 18, 3:33PM EST0

What's with crowdfunding that made you choose it as a platform to promote your cause?

Nov 18, 11:23AM EST0

Ashley has a page for pseudotumoe but were trying to find some help also. 

Nov 18, 11:45AM EST0

Also someone off the amafeed seen my fundraiser on facebook and told me to post it here. Ashley site has everything about pseudotumor along with pictures and videos and updates

Nov 18, 11:49AM EST0

What is the long-term effect of her condition once she gets out of the hospital?

Nov 18, 7:17AM EST0

She will always have tremoring and the symptoms that come along with pseudotumor but there hoping when the shunt it fixed it is tolerable

Nov 18, 9:32AM EST0

Would you consider getting a specialist onboard in order to help you make this campaign a success?

Nov 18, 7:16AM EST0

not sure

Nov 18, 9:32AM EST0

Aside from you who is taking care of your daughter, who is taking care of her baby?

Nov 17, 11:56PM EST0

we have family that also helps with her. Even with her tremoring she still takes care of her daughter. She had surgery and never stopped her from taking care of her.

Nov 18, 9:32AM EST0

Have you approached any famous people or other influencers to help you in any way?

Nov 17, 10:03PM EST0

no i havent

Nov 18, 6:19AM EST0

What is the current situation of your daughter?

Nov 17, 3:59PM EST0

She lives with us. She is in shunt failure once again and she sees the neurologist and neurosurgeon on Dec 1 to see when her surgery will be

Nov 18, 6:20AM EST0

Have you tried crowdfunding campaigns to raise money?

Nov 16, 7:30AM EST0

That is what the youcaring page is for. We have had the fundraiser  up for a while.

Nov 18, 6:20AM EST0